October 22, 2007 @ 12:08 am | Filed under: Books, Family, Leukemia, Robert's Snow
"There are things I think people have a need to know . . . I want them
to look around more — to pay attention to the world around them, to
take an extra moment to look at things, to think about things."
Ten and a half years ago, when our 21-month-old daughter was diagnosed with Acute Lymphoblastic Leukemia, Scott and I were told to be thankful it was ALL and not some other kind of cancer. We were thankful, strange as it was to feel glad about anything related to a cancer diagnosis. We knew that the prognosis was better for kids with ALL than with other types of cancer.
But we were a full week into treatment before we found out how very good the prognosis actually was. Jane had started the week with two complete blood exchanges, purging her body of all the cancerous white blood cells that had escaped her bone marrow and were coursing through her tiny veins. She had made it through the first terrible week of chemotherapy—the fevers, the vomiting, the countless needle sticks. One week down, years to go. The head of the hem/onc department came in to meet us, and he asked us, rather professorially, what our goal was with Jane’s treatment.
"Remission?" I asked. He smiled in obvious amusement.
"Yes, of course," he said, shrugging. "We will get her into remission, and very soon. But that is just the beginning. Our goal is to keep her in remission. Our goal is a cure."
Scott and I stared at him. I started to cry. A week earlier, during the nightmarish hour between leaving our pediatrician’s office and arriving, per his urgent instructions, at the children’s hospital emergency room, we had swung by our apartment to restock the diaper bag. On the way out the door, I had grabbed an old (but not that old) medical reference book we happened to have on the shelf. In the car I read aloud to Scott in horror. If the pediatrician was right, if the baby had leukemia, the best-case scenario, according to this tome, was a five-to-seven-year survival rate.
Until that moment when the Chief Oncologist said the word "cure," Scott and I had believed our best hope at the end of putting Jane through the torture of chemotherapy was that she would live to see her ninth birthday.
"I didn’t know," I croaked. "I didn’t know there was a cure for cancer."
"For this kind, there is," said the doctor.
We all know that ALL is but one of the many, many kinds of cancer. The treatment—the cure—doesn’t work for everyone, but it works for a lot of people, especially children. Ten years later, Jane is still in remission and spilling joy everywhere she goes. If you find joy on this blog, she is a large part of the reason why. I threw that old medical reference book in the trash long ago, because the hard work of doctors and researchers, and the courage of patients who came before my Jane, had rendered its somber pronouncements inaccurate.
At the Dana-Farber Cancer Institute, researchers are working on more, and better, cures. This research is paid for by the Jimmy Fund, named after a 12-year-old cancer patient who made a radio appeal in 1948 that brought in some $200,000 in funding for research that first year. Jimmy, like Jane, survived his cancer. It’s possible that Jane survived because of breakthroughs in chemotherapy protocols developed by the doctors at Dana-Farber—I don’t have any idea who all the people were whose work saved my daughter’s life. I only know that I am thankful to the very marrow of my bones. And hers.
Children’s book illustrator Grace Lin wrote a picture book called Robert’s Snow during her husband’s fight against bone cancer. Robert Mercer was diagnosed with Ewing’s sarcoma just months after he and Grace were married. Grace tells the story on the Robert’s Snow site:
Nine months later, Robert was declared cancer-free. "Robert’s Snow"
was accepted for publication. We felt that our good luck had finally
arrived. But, in March 2004, Robert’s cancer returned. We were
devastated. Our doctor told us that Robert’s best chance for long-term
survival was a breakthrough in cancer research.
So we decided to help the doctors the best we could. Because
"Robert’s Snow" had meant so much to us the first time, we decided to
use it as an inspiration for a fundraiser. We recruited children’s book
artists to paint wooden snowflakes and auctioned them off — the
proceeds going to cancer research at Dana-Farber Cancer Institute.
The response was tremendous. "Robert’s Snow: for Cancer’s Cure" snowballed greater than we ever dreamed.
I am grieved to say that Robert Mercer passed away this summer. But Robert’s Snow lives on. To date, the Robert’s Snow snowflake auctions have raised over $200,000 for the Dana-Farber Cancer Institute. This year’s auctions will begin in November, and you can bid on a stunning array of snowflakes illustrated by some of the most talented artists in children’s books.
Starting last week, bloggers all over the kidlitosphere joined in an effort to spread awareness of the upcoming Robert’s Snow auctions. Encouraged by Jules and Eisha of Seven Impossible Things Before Breakfast, who dreamed up the "Blogging for a Cure" event, dozens of bloggers are featuring snowflakes by some of the participating illustrators. There are many, many more snowflakes being auctioned in addition to the ones you will see in these posts. I encourage you to go explore the auction site and feast your eyes on all these beautiful pieces of art.
Here is one of them. What an honor it is to be able to feature David Macaulay’s snowflake here at Bonny Glen. I mean, David Macaulay! Caldecott winner! Author of The Way Things Work! The man who taught Jane what a laser is, and how parking meters work, and what is the difference between nuclear fission and nuclear fusion!
David Macaulay painted a snowflake for the Robert’s Snow auction. Here it is, front and back, reproduced here with permission:
Don’t you love that sweet, pensive face?
Ten years ago, when Jane was diagnosed, David Macauley’s books already had pride of place on our living room shelf. I first saw The Way Things Work in the children’s bookstore I worked at during grad school. I bought a copy with my employee discount. I hoped to have children one day, lots of them, and I knew they’d want to know how stuff worked.
Now here it is 2007 and I’ve got those children, a lot of them!, and they are indeed full of ‘satiable curtiosities. David Macauley’s books have helped show them the world. Sit down with one of his black-and-white "Building Books" masterpieces, and you’re likely to spend the whole rest of the day immersed in the details of another corner of the world. Here are some of the books he wrote and illustrated, a homeschooler’s dream library:
City: A Story of Roman Planning and Construction
He also wrote the Caldecott winner Black and White, a stunner of a picture book, as well as the charming Angelo.
There will be three rounds of snowflake auctions, beginning November 19th. If you’d like to see David Macauley’s snowflake hanging on your Christmas tree or in your winter window, it will be sold in the second auction, which starts on November 26th. (Trivia time: one of the other snowflakes in that auction was made by the illustrator of one of my books. Do you know who?)
Many thanks to Mr. Macaulay and all the illustrators who donated these gorgeous works of art for the Robert’s Snow auction, to Grace Lin for founding the event (view her own snowflake here), and to Jules and Eisha for organizing the Blogging for a Cure effort. And many, many thanks to the folks of the Dana-Farber Institute for continuing to work toward cures for other people like Jane.
Monday, October 22
- Mark Teague at The Miss Rumphius Effect
- Sharon Vargo at Finding Wonderland
- Christopher Demarest at Writing and Ruminating
- Rose Mary Berlin at Charlotte’s Library
Tuesday, October 23
- Carin Berger at Chasing Ray
- Marion Eldridge at Chicken Spaghetti
- Sophie Blackall at not your mother’s bookclub
- Erik Brooks at Bildungsroman
- Brian Lies at Greetings from Nowhere
Wednesday, October 24
- Elisa Kleven at Rozzie Land
- Consie Powell at Becky’s Book Reviews
- Jimmy Pickering at Shaken & Stirred
- Frank Dormer at What Adrienne Thinks About That
- Sheila Bailey at Lizjonesbooks
Thursday, October 25
- Julia Denos at Interactive Reader
- Rebecca Doughty at A Chair, A Fireplace & A Tea Cozy
- Brian Floca at A Fuse #8 Production
- Margaret Chodos-Irvine at readergirlz
Friday, October 26
- David Ezra Stein at HipWriterMama
- Juli Kangas at Sam Riddleburger’s blog
- Ginger Nielson at Miss O’s School Library
- Margot Apple at Jo’s Journal
Saturday, October 27
- Julie Fromme Fortenberry at Your Neighborhood Librarian
- Sarah Dillard at The Silver Lining
- John Hassett at cynthialord’s Journal
- Abigail Marble at Please Come Flying
Sunday, October 28
- Ashley Wolff at A Chair, A Fireplace & A Tea Cozy
- Barbara Garrison at Brooklyn Arden
- Kelly Murphy at ChatRabbit
summer: day 1
Art Doesn’t Always Imitate Life
A Message for Rose
Three posts about writing and publishing