Tuesday, 23 February 2010
So today Rilla asked if we could play a game where I pretend I’m her mommy. Um. OK. About ten minutes in, she said, “Can you pause the game for a second? I need to ask you a question when you’re my REAL mommy.”
Image via Skillshare
Rilla’s pick for our Saturday night art date: “How to Sculpt Beetles, Bugs and Scarabs Realistically” class at Skillshare. Delightful course. Really enjoyed the instructor, Stephanie Kilgast—her lessons are clear, simple, and inspiring. Rilla’s take was: “OH GOOD, this is exactly what I’ve been needing to learn.” (Her two chief interests in life are bugs and art. She wants to become an entomologist-slash-artist.)
My house is about to be overrun with Sculpey beetles, I can tell.
(Referral code for two months’ free trial: http://skl.sh/2GogjAi )
Pulling a few more things over from Facebook.
Wednesday:
Oh my goodness what a day. First visit to Oregon State Capitol, first time (ever!) talking to state representatives and a policy aide to the governor in my role as advocate for intellectual and developmental disability supports. Having a voice in government: amazing experience.
Friday:
Oregon’s State Legislature is getting some big stuff right this week. Like this:
HB 4101 would stop insurance companies from treating hearing aids as cosmetic or bilateral cochlear implants as experimental. The legislation would benefit Oregon children with hearing loss and their families by:
• Ongoing evaluations, fittings & equipment: Expanding the scope of what private insurers are required to cover for hearing services and technology.
• Help navigating complex insurance system: Requiring insurance companies to assign a case manager to each family when their child is diagnosed with permanent hearing loss to help them navigate the insurance system.
• Expand access to care with more doctors: To alleviate a shortage of pediatric audiologists, the bill would also require companies to contract with a specific number of pediatric audiologists to ensure kids have quick access to services.
This week, HB 4104 passed the House unanimously. It will now move to the Senate.
(source: Disability Rights Oregon)
But also:
So let’s chat a bit about HR 620, which passed in the US House of Representatives yesterday. Quoting Celeste Pewter: this bill “upends a key provision of the ADA by preventing people with disabilities from immediately going to court to enforce their right and to press for timely removal of the barrier that impedes access. It also removes any incentive for businesses to comply proactively with the ADA.”
And there’s the thing. Proponents of the bill paint a picture of people filing greedy or frivolous lawsuits. It’s really important to understand that ***the only thing that can be collected in ADA lawsuits are attorneys’ fees.*** You can’t win damages. If you win the lawsuit, the business or institution has to comply with federal law regarding accessibility.
The bill that passed yesterday makes it a lot harder to pursue the basic accessibility that is already required by federal law. It’s an ugly piece of work. I hope you’ll join me in imploring the Senate to vote no when their turn comes. You can reach your Senator via the Capitol switchboard: (202) 224-3121.
I’m sitting here dumbfounded at the irony of a bill that introduces access barriers to a process intended to REMOVE ACCESS BARRIERS.
I wrote this on Facebook today and wanted to share it here too.
I know there’s way too much to focus on right now. Today alone there’s about a year’s worth of news to process. But I want to focus some attention on Trump’s infrastructure plan that was released earlier this week (i.e. a lifetime ago). There’s a lot to be troubled by in this plan, but what made me choke was the part about match funding for infrastructure projects.
Okay, this can be a dry topic. Five years ago, I would have skimmed right past. But then I spent a few years writing grant applications for infrastructure projects in small California and Texas towns. Oof, talk about a learning curve. Really worthy projects, though: funding for sidewalks in a residential neighborhood so kids wouldn’t have to walk to school in the street. Funding for a farmer’s market in an area with a serious food desert. Funding for wetland restoration projects in an urban area to help filter urban runoff (teeming with bacteria) from contaminating beaches and residential neighborhoods. A “universal playground” accessible to kids and adults who use wheelchairs. The kind of stuff that makes daily life for ordinary people better in a tangible, practical way.
Those grant applications were doozies. The entire reason I was asked on board to write them is because a big part of grantwriting is narrative: how to tell the story of why this community should get federal or state funding for this project. Every grant I wrote was competing against hundreds of other applications.
These projects were scored on their merits: what benefits they would bring to the community. Improved health, carbon emissions reductions, removal of access barriers, and so forth.
Most scoring rubrics included a small number of points awarded to projects that had additional funding sources–the “match.” This might mean, say, that the town seeking funding for sidewalks would say: the town can pay X amount and we need Y amount in federal (or state, depending on the program) funding to complete the project.
Usually, the points awarded for a match were a small percentage of the total points. A match might give your project an extra 5 points out of a hundred, say. And the reason for this is that typically, the communities most in need of infrastructure projects are those least able to afford them. A match helped your application, but wasn’t nearly as important as the practical benefits and efficiency of the project itself.
Okay, that’s a lot of backstory. Here’s what made me choke: In the Trump Administration’s proposed infrastructure plan, “The amount of non-federal funding supplied for a given project will count for 70% of its score, while “evidence supporting how the project will spur economic and social returns on investment” will be weighted at just 5%.”
WHAT. WHAT. WHAT.
SEVENTY PERCENT OF ITS SCORE?
I’m speechless. Or, well, maybe not since this post is so long no one’s going to make it to the bottom.
I just…that’s a disastrous tidbit of information.
I’m not the only one who sputtered over this revelation. From yesterday’s Guardian:
“In other words, projects will live or die based on the resources they can attract, rather than the number of people they would serve or how urgently they are needed.
“This system not only incentivizes projects that profit at the public’s expense, such as toll roads, but also increases the likelihood that federal dollars will flow to wealthy jurisdictions that need them the least. When priorities are determined by wealth and profitability, the disadvantaged are left behind. Under Trump’s plan, communities that most need critical infrastructure investments – low-income communities, often communities of color – will be left out.”
Infrastructure isn’t sexy, and right now news of this plan is understandably drowned out by bigger, more urgent happenings. But we need to keep an eye on this. I’ll be watching.
So here’s a little peek at what my Northeast Portland neighborhood is looking like this first week of February. 🙂
I opened my drafts file here yesterday and saw that the last post I started was a one-line fragment written on January 16:
We’ve been sick, most of us. Just a cruel bug: aches, sore throat, cough.
—Which I suppose answers the question of why I fell off the internet for a month. 🙂 My cough hung around for a good while and still hasn’t vanished entirely. But I’m more or less back to myself, and everyone else is fine. But yikes, that virus really squelched my plan to get back in the blogging groove!
And now I can’t get any photos to upload here. Hmm. I was going to pepper you with photos of the incredible bloom happening in my neighborhood right now—crocuses and camellias and hundreds of little daffodil spikes—but no luck. Well, some of it’s at my Instagram if you’d like a peek. (You can view IG pics on a laptop without needing to log in or download the app, FYI.)
What else are we up to? Journey North Mystery Class, flying solo for the first time in many many many years. (Sniffle.) It’s Huck’s first time participating. He and Rilla each picked a mystery city, and I took the one that looks to be somewhere in Antarctica. Plus we’re charting photoperiods for both Portland and San Diego, to compare. Huck is much more into the charting than I expected. Then again, he loves math. Rilla tolerates the math because she likes the discovery part of the project so much.
Things we’re reading together: Paddle-to-the-Sea (the last first time!); The Children’s Homer (“you purchased this item on Feb. 5, 2005,” Amazon tells me); Our Island Story; and Moominsummer Madness. And the usual assortment of poetry books!
Oh, and Huck had a birthday. This baby? Is nine years old.
(Huh. So photos from my archives still work. Just can’t get new ones to upload. Okay. I can work with this.)
(I remember the first time I put that shirt on him, and Rilla, who would have been around 3 1/2 or 4 at the time, exclaimed: “He’s wearing a MAN SHIRT!”)