Archive for the 'Hearing Loss' Category
November 7, 2009 @ 7:21 pm | Filed under: Hearing Loss,These People Crack Me Up,Wonderboy
Wonderboy: My hearing aids aren’t working.
Me: Oh, are your batteries dead?
Wonderboy: Huh?
Me: Do you need new batteries?
Wonderboy: What?
Me: Come here, let me check your hearing aids.
Wonderboy: I think my batteries got dead.
(And yes, we can communicate in sign language as well, but during this conversation I was holding a plate in one hand and a giant slice of pizza in the other. Priorities.)
October 22, 2009 @ 7:02 am | Filed under: Hearing Loss,These People Crack Me Up,Wonderboy
During yesterday’s evening tidy, Jane asked Wonderboy to put a pair of shoes away in the cubby.
Wonderboy, as many of you know, is hard of hearing. Even with his hearing aids in, he cannot pick up soft unvoiced consonant sounds such as those made by the letters C and T.
Which may explain why, this morning, we discovered that pair of shoes in the kids’ bathroom—in the tubby.
December 30, 2008 @ 2:52 pm | Filed under: ASL,Fun Educational Stuff,Hearing Loss,Kids' Television,Sign Language,Special Needs Children,Speech Delay,Wonderboy
What Rilla’s saying at the end there is “With Alex, Leah, and Hopkins.” Totally unprompted, I swear.
When I watched our Christmas 2005 video the other day, the bit that gave me the biggest pang of nostalgia was watching Wonderboy signing away. He hardly signs at all anymore, now that he talks so much. I’m thrilled with his verbal speech, but I really miss the signing. It’s funny to think back on how much ASL dominated our lives (in a rich and satisfying way) for a couple of years there, and now our use and pursuit of sign language has slipped to the back burner, becoming something of a hobby rather than a daily necessity. Jane still wants to certify as an ASL interpreter someday, and every few months we pull out our materials and learn another chunk of vocabulary and grammar. There are community college courses we might take next year. It’s a beautiful and important language, and I don’t want to let it go, even if our boy doesn’t need rely on it for communication the way he once did.
And of course the Signing Time DVDs remain in great demand with my little people, as the video above attests. With Rilla, we’re seeing all the benefits of sign language we saw with the first three girls—because rudimentary ASL was a part of our baby & toddler life from the get-go, long before we had a Wonderboy or knew he had hearing loss.
Here are some old posts singing the praises of our favorite kiddie DVDs:
Something Else to Buy Instead of Curriculum: Signing Time
December 26, 2008 @ 8:24 pm | Filed under: Family,Hearing Loss,These People Crack Me Up,Wonderboy
Here’s my boy, hanging out having a snack with his good buddy, Mr. Potato Head.
I wondered why one of Potato Head’s ears was lying on the couch with a spare screw-cover (left over from the construction of a toy shopping cart) stuck on the end. Wonderboy informed me that it isn’t an ear—it’s a hearing aid. And it needed a new battery, of course. Evidently he went rummaging around in the drawer where we keep his own hearing aid batteries and found the little orange screw-cover.
Oh, I could just eat him up every minute of the day.
September 15, 2008 @ 6:51 am | Filed under: Hearing Loss,Special Needs Children,Wonderboy
I am reposting this piece from March, 2007, now that I have finally gotten around to fixing the broken image links. When I imported it here from Lilting House, all the images fell out. Now they’re back!
Did you know that ears are one of the few body parts that never stop growing? I think noses might be the other. Besides hair and fingernails, obviously.
When you wear behind-the-ear hearing aids, the hearing aids last for years, but the ear molds—the little custom-made silicone or acrylic doohickeys that fits into your ear—need replacing every so often. As your ear grows, the ear mold ceases to fit, and first you get a feedback problem, and then eventually the mold just won’t stay in the ear at all.
So you go to the audiologist’s office, and she makes new impressions of your ears with a quick-hardening goo. You ship the impressions off to a lab, and in a couple of weeks you’ll have your brand new ear molds.
If you are three years old, you may find this process somewhat entertaining, if mildly uncomfortable. If you are six years old and the uncomfortable part is happening to your brother, not to you, you will consider it a ripping good time. Beanie pronounced it “huge fun.”
I get a large number of hits every day from hearing-aid-related searches, including variations of “toddler ear molds,” so I thought it might be helpful if I posted a walk-through of the process. Besides, pictures are always fun.
First the audiologist checks your ears, making sure there isn’t too much wax in there—that might mess up the shape of the impression. Then she carefully inserts a little foam stopper to make sure none of the impression goo goes too far up the ear canal.
Then she pops the two kinds of goo out of their little bubble wrappers, and she mixes them together into a pliable substance that can be squeezed out of a syringe but will harden within a few minutes. Beanie, supervising, thought this mixing process looked pretty nifty and is now wondering how to work “become an audiologist” into her plan to be a scuba-diver with ten children.
The audiologist scoops the goo into the syringe and carefully squeezes it into the ear, sort of like making an icing rose on a birthday cake. Now you have to sit and wait. You can’t poke at the goo, much as you might wish to. Nor can you pull on the string that is connected to the little foam stopper inside your ear canal. Patience, grasshopper.
Meanwhile, the audiologist squirts the leftover goo out of the syringe. This, I am told, is THE BEST PART.
Let’s do the other ear while we’re waiting. It’s okay to drool.
Finished! Time to pull out the impression. No need to be suspicious; it won’t bite.
The impressions go into a box and are dispatched to the Lab, that mysterious place where ear molds are born.
Now comes the fun part! (The other fun part, says Beanie.) What color ear molds do you want? The sky’s the limit. No, Bean, your brother isn’t getting the sparkles.
What color did he get? You’ll have to wait two weeks to find out.
August 15, 2008 @ 7:34 pm | Filed under: Family Adventures,Hearing Loss,Wonderboy
Today was the Solemnity of the Assumption, a holy day for us. We went to the 9 a.m. Mass at the chapel of a local nursing home run by Carmelite sisters. The kids and I sat in the last row, but the boy grew too noisy, and I had to take the two little ones out to the lobby. By “too noisy” I mean he’s in this phase where his favorite favorite thing is to ruff-ruff like a puppy. There we were in this tiny little chapel full of nuns and elderly people, and my son was barking. During the homily. Embarrassing much? You could say that.
So I spent the rest of Mass in the lobby, my cheeks burning, trying to keep the barking to a whisper. Trouble is, Wonderboy can’t HEAR a whisper. This has a somewhat limiting effect upon his desire to vocalize sotto voce. I was kicking myself for not getting the crew up and out early enough to make the 8 a.m. Mass at our own parish, which has a soundproofed cry room.
When Mass was over, the priest, an elderly fellow himself, walked straight through the chapel doors to the lobby where I was standing. He smiled at us, shook my hand, admired the beautiful children. I apologized for Wonderboy’s noise.
The priest held a hand to his ear.
“Eh? What’s that?” he shouted, in the unmistakable tones of the hard-of-hearing.
It is impossible for me to convey the deliciousness of that moment. In an instant, my mortification was gone. Of course I still wished that Wonderboy had kept quiet (he’s been so good during Sunday Mass the last couple of months—and we sit right near the front of the church, not in the cry room, which is a rowdy, unpleasant place on a Sunday), but I realized once again what experience has taught me so many times. We’re never as great a nuisance as I think we are in situations like this. Hardly ever is anyone judging us as sternly as I am, behind my flaming cheeks.
“What’s that you said?” the priest repeated.
I raised my voice, as if I were talking to my semi-deaf son. “I’M SORRY MY LITTLE BOY WAS SO NOISY DURING MASS!”
The priest gave a hearty laugh. “It’s not like I would notice!”
He laid a hand on Wonderboy’s head, gnarled fingers patting the white-blond hair above the blue hearing aids.
“My brother had fourteen children,” he said. “Fourteen nieces and nephews, I had. Now those children could make some noise!”
The congregation began to file out: white-haired ladies with walkers, old men leaning on canes, beaming Carmelite sisters in their brown habits—every one of them stopping to smile at the children, ruffle a head of hair, shake a hand. There was no hint of reproof or censure in anyone’s manner: only warm smiles, friendly greetings, huge peals of laughter when Wonderboy, God bless him, ruff-ruffed at them. These good souls seemed universally delighted to see—and yes, even hear—youngsters in the aisles of their nursing home which, perhaps, come to think of it, is sometimes all too quiet.
July 20, 2008 @ 8:33 am | Filed under: Hearing Loss,Sign Language,Special Needs Children,Speech Delay,Wonderboy
Originally posted in June 2006.
Wonderboy’s hearing loss came as a shock to us. Sure, we knew he’d failed the newborn hearing test. Three times. But those rounds of testing were administered in the NICU where there is always a humming and beeping of background noise, and the tech had told us that ambient noise could skew the test results. We had more pressing things to worry about: his (minor) heart defect; his recovery from omphalocele repair surgery; the genetic testing necessary to determine whether he had a potentially serious chromosomal syndrome; the fact that he was going home on oxygen. At least he was going home, and we tucked the hearing-test business to the back of our minds and focused on the immediate business of keeping him alive.
Every month the health department sent us a letter reminding us to have the hearing screen repeated. Sure thing, we said, just as soon as things slow down a bit. We were constantly having to take him to some specialist or another. The chromosome study came back negative: his medical issues were not due to a genetic syndrome. He was just one of those babies for whom something goes slightly awry early on in utero, resulting in a number of physical abnormalities down the line. An MRI had shown brain abnormality, but what its effects would be, no one could say: time will tell, they said. (They are still saying that.) He had extremely high muscle tone (hypertonia) and could not stretch out his arms and legs very far. His fists were tightly clenched. He started physical therapy at four months of age. He required emergency surgery to repair a double hernia with incarcerated bowel. The cardiologist was still keeping a close eye on his heart. The hearing test would just have to wait.
Besides, we told ourselves, we know he isn’t deaf. He startled to loud noises. Of all the things there were to worry about, we really didn’t think hearing loss was one of them.
But by six months, we had suspicions. He wasn’t babbling. He didn’t turn his head at the sound of my voice, lighting up with recognition before even seeing me, as our other children had. We took him back for another hearing screen.
He failed.
The audiologist said something about a “mild” hearing loss, and I thought that didn’t sound too bad. “Oh, no,” she told me, hastening to set me straight. “It isn’t like a ‘mild’ fever. ANY hearing loss is serious. Most speech sounds fall at the bottom of the scale, so if you have any hearing loss at all, you’re going to have trouble with speech.”
As it turned out, Wonderboy’s loss was a bit more serious than the audiologist first thought. Further testing placed him at the “moderate” level on the scale of mild—moderate—severe—profound. Unaided, Wonderboy’s ears can’t detect sounds softer than 50 decibels. Most speech sounds fall in the 20-decibel-or-lower range. Our little guy can hear vowel sounds, the louder middles of words, but few of the consonants that shape sound into speech. For Wonderboy, people probably sound a lot like Charlie Brown’s teacher. Wah-WAH-wah-wah-waahh-wah. We learned about the speech banana: the area on a graph that shows where speech sounds fall in the decibel and frequency ranges. Wonderboy can’t hear sounds above the horizontal 50 line on that chart.
(More or less. He has a sloping loss which is slightly better at the lower frequencies.)
By his first birthday he was wearing hearing aids, and what a huge difference we could see! Aided, he tests around the 20-decibel range. He hears and understands a great deal of what we say. He is two and a half years old now, and he is finally beginning to add some consonant sounds to his verbal speech. Daddy used to be “Ah-ee” and now he is “Gaggy.” (This cracks me up. You can get a lot of mileage out of calling your husband Gag.) Grandpa is Amp-Ha. Wonderboy’s baby sister is “Gay-gee.” As you can see, he doesn’t have a B sound yet. His M is perfect, though; I have been Mommy, clear as a bell, for over a year.
But Wonderboy’s verbal speech is only part of the picture. His actual vocabulary is enormous, thanks to sign language. We are huge fans of the Signing Time DVDs. He uses a combination of sign and speech; we all do. Although it appears he will be primarily a verbal person as he gets older, sign language will always be an important second language for him. Hearing aids, incredible as the technology is nowadays, don’t do you any good at the swimming pool. Just for instance.
Hard of hearing. It used to be a phrase that conjured up in my mind the image of a grizzled old man with an ear trumpet. What? What’d ye say? Speak up, lad! (Apparently he is a grizzled old Scotsman.) Now it applies to my son. Words pop up on a TV screen, “closed captioned for the deaf and hard of hearing,” and I’ll give a little mental jump: Oh! That means Wonderboy!
Watching our children learn to speak is one of the great delights of parenthood. We mothers tend to collect their funny pronunciations, their experimentation with the meanings of words. This time around, my joy has been doubled, for I get to see communication unfold in two languages. His funny little toddler signs are just as endearing as any “helidopter” or “oapymeal” ever uttered by a two-year-old. (“Oapymeal” was one of Jane’s. It meant oatmeal. I served it often just to hear her say it.)
There are some links to American Sign Language resources in the sidebar of my old site. (I’ll set up a page here soon as I get a chance.) I can’t say enough about the wonders and benefits of ASL, not just for deaf and hard of hearing children, but for all babies and toddlers, especially those with any type of speech delay. ASL is a beautiful, nuanced language, a visual poetry. I count myself privileged to have been put in the way of learning it. Jane is determined to certify as an interpreter someday, and I have to admit I’m a little jealous. I wish I’d learned at her age.
Wonderboy makes a fist and touches a knuckle to his cheek, wiggling the hand. “Ah-hul!” he shouts. Apple, in two languages. The speech banana? We’ll get there, one way or another.
*Audiogram image courtesy of GoHear.org.
Tags: special needs children, American Sign Language, baby sign language, hard of hearing
January 8, 2008 @ 9:39 am | Filed under: Hearing Loss
I’ve mentioned the Captioned Media Program before, but it’s a topic that bears revisiting. Now called the Described and Captioned Media Program, this organization is funded by the U.S. Department of Education. Its mission is "to promote and provide equal access to communication
and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind." The DCMP maintains a clearinghouse for information about all aspects of life with these disabilities and a huge lending library of videos and DVDs on all topics—captioned for the deaf and hard of hearing, or on audio for the blind. Many of the materials are also available online as streaming video.
If any member of your family is blind, deaf, or hard of hearing, your family qualifies for membership in the program and may check out library materials at no charge. Even the postage is covered by the program. I believe classroom teachers with qualifying students may also apply for membership.
We have checked out several good ASL instructional DVDs from DCMP in the past, and now I see that many of these (and others) can be viewed online as well. I’m thrilled; this is just what we need to carry us the next step down the road in our ASL studies.
December 2, 2007 @ 7:51 pm | Filed under: Hearing Loss,Sign Language,Special Needs Children,Speech Delay,Wonderboy
Still trying to tidy up my archives. Here are the most substantive posts I’ve written about Wonderboy’s hearing loss:
The Speech Banana (hearing loss diagnosis)
Getting Ear Molds Made (a photoessay)
Practicing for Hearing Tests (games to help preschoolers in the sound booth)
Visual Phonics
Newborn Hearing Test Advice
Sign Language (how awesome it is)
Fun with FM (heh heh)
Expressive and Receptive Language
November 18, 2007 @ 9:52 am | Filed under: Hearing Loss,Sign Language,Special Needs Children,Speech Delay,Wonderboy
This Lilting House post gets more search-engine hits than anything else I’ve written. Every week I am amazed by how many people land on my blog via a search for “speech banana” and related terms. I thought it might be helpful if I reposted it here. This post was written in June of 2006. More recent posts on related subjects can be found in the hearing loss archive, including a photo essay about getting ear molds for hearing aids and advice regarding the newborn hearing screen.
Wonderboy’s hearing loss came as a shock to us. Sure, we knew he’d failed the newborn hearing test. Three times. But those rounds of testing were administered in the NICU where there is always a humming and beeping of background noise, and the tech had told us that ambient noise could skew the test results. We had more pressing things to worry about: his (minor) heart defect; his recovery from omphalocele repair surgery; the genetic testing necessary to determine whether he had a potentially serious chromosomal syndrome; the fact that he was going home on oxygen. At least he was going home, and we tucked the hearing-test business to the back of our minds and focused on the immediate business of keeping him alive.
Every month the health department sent us a letter reminding us to have the hearing screen repeated. Sure thing, we said, just as soon as things slow down a bit. We were constantly having to take him to some specialist or another. The chromosome study came back negative: his medical issues were not due to a genetic syndrome. He was just one of those babies for whom something goes slightly awry early on in utero, resulting in a number of physical abnormalities down the line. An MRI had shown brain abnormality, but what its effects would be, no one could say: time will tell, they said. (They are still saying that.) He had extremely high muscle tone (hypertonia) and could not stretch out his arms and legs very far. His fists were tightly clenched. He started physical therapy at four months of age. He required emergency surgery to repair a double hernia with incarcerated bowel. The cardiologist was still keeping a close eye on his heart. The hearing test would just have to wait.
Besides, we told ourselves, we know he isn’t deaf. He startled to loud noises. Of all the things there were to worry about, we really didn’t think hearing loss was one of them.
But by six months, we had suspicions. He wasn’t babbling. He didn’t turn his head at the sound of my voice, lighting up with recognition before even seeing me, as our other children had. We took him back for another hearing screen.
He failed.
The audiologist said something about a “mild” hearing loss, and I thought that didn’t sound too bad. “Oh, no,” she told me, hastening to set me straight. “It isn’t like a ‘mild’ fever. ANY hearing loss is serious. Most speech sounds fall at the bottom of the scale, so if you have any hearing loss at all, you’re going to have trouble with speech.”
As it turned out, Wonderboy’s loss was a bit more serious than the audiologist first thought. Further testing placed him at the “moderate” level on the scale of mild—moderate—severe—profound. Unaided, Wonderboy’s ears can’t detect sounds softer than 50 decibels. Most speech sounds fall in the 20-decibel-or-lower range. Our little guy can hear vowel sounds, the louder middles of words, but few of the consonants that shape sound into speech. For Wonderboy, people probably sound a lot like Charlie Brown’s teacher. Wah-WAH-wah-wah-waahh-wah. We learned about the speech banana: the area on a graph that shows where speech sounds fall in the decibel and frequency ranges. Wonderboy can’t hear sounds above the horizontal 50 line on that chart.
(More or less. He has a sloping loss which is slightly better at the lower frequencies.)
By his first birthday he was wearing hearing aids, and what a huge difference we could see! Aided, he tests around the 20-decibel range. He hears and understands a great deal of what we say. He is two and a half years old now, and he is finally beginning to add some consonant sounds to his verbal speech. Daddy used to be “Ah-ee” and now he is “Gaggy.” (This cracks me up. You can get a lot of mileage out of calling your husband Gag.) Grandpa is Amp-Ha. Wonderboy’s baby sister is “Gay-gee.” As you can see, he doesn’t have a B sound yet. His M is perfect, though; I have been Mommy, clear as a bell, for over a year.
But Wonderboy’s verbal speech is only part of the picture. His actual vocabulary is enormous, thanks to sign language. He uses a combination of sign and speech; we all do. Although it appears he will be primarily a verbal person as he gets older, sign language will always be an important second language for him. Hearing aids, incredible as the technology is nowadays, don’t do you any good at the swimming pool. Just for instance.
Hard of hearing. It used to be a phrase that conjured up in my mind the image of a grizzled old man with an ear trumpet. What? What’d ye say? Speak up, lad! (Apparently he is a grizzled old Scotsman.) Now it applies to my son. Words pop up on a TV screen, “closed captioned for the deaf and hard of hearing,” and I’ll give a little mental jump: Oh! That means Wonderboy!
Watching our children learn to speak is one of the great delights of parenthood. We mothers tend to collect their funny pronunciations, their experimentation with the meanings of words. This time around, my joy has been doubled, for I get to see communication unfold in two languages. His funny little toddler signs are just as endearing as any “helidopter” or “oapymeal” ever uttered by a two-year-old. (“Oapymeal” was one of Jane’s. It meant oatmeal. I served it often just to hear her say it.)
I put some links in my sidebar for American Sign Language resources. I can’t say enough about the wonders and benefits of ASL, not just for deaf and hard of hearing children, but for all babies and toddlers, especially those with any type of speech delay. ASL is a beautiful, nuanced language, a visual poetry. I count myself privileged to have been put in the way of learning it. Jane is determined to certify as an interpreter someday, and I have to admit I’m a little jealous. I wish I’d learned at her age.
Wonderboy makes a fist and touches a knuckle to his cheek, wiggling the hand. “Ah-hul!” he shouts. Apple, in two languages. The speech banana? We’ll get there, one way or another.
*Audiogram image courtesy of GoHear.org.
